CLL, maybe it’s what I have & not what I am, But I’m tired all the time
Just reread yesterday’s entry and realize I am doing this to remind myself of who I really think I am, so I can keep moving ahead with my family, life, business, and whatever else God allows me to deal with or has for me to accomplish. I certainly know that for about 2 months I absolutely felt like doing nothing and was tired all the time, no matter how much I slept and I don’t believe simply putting a name on a condition I have made me that way, I do think the 70 mg of Prednisone a day had allot to do with it. As the dosage was lowered, while the platelet count was (is) coming back down (the Dr. says 70 - 80,000 would be acceptable) I have started to feel more like doing things, but even that only seems to last for an hour or so as I’m working on anything before I’m tired again. (Reminds me I have to ask Dr. if 20% of platelets are bad do they still count in the lower limit acceptable for the blood count.)
Anyway 2 months of walking around dead on my feet trying to keep doing everything that needed to be done and not telling anyone we didn’t have to (other then Pastor, a few close friends and and as few people I have to work with as possible) certainly left a mess of all the normal things like paying the bills, raking the leaves and assorted other things associated with home ownership. Then the last couple months of feeling like getting things caught up, but being tired after an hour or so of working at them just barely kept me even with as far behind as I’d gotten. Oh yeah, in with all this was fitting in those extra Dr. visits for blood work every week and those scans and results of them and all.
As of this week my count is at 100,000 and I’m on 2.5 mg prednisone daily along with all the other stuff I’d been taking all along with one added dose of Metformin a day for the diabetes control. And I think I can / should look back and take inventory of what I have and have not accomplished - more on that next time.
January 19th, 2008 at 11:09 am
Hi Frank,
I too am a CLLer. Currently undergoing my second treatment FCR. My first gave me remission for 4.5 years so I am hoping for another just like the other. Sure would like to see you join us at CLL Christian Friends if you are in a mind to. I am an Admin there and we have a great support site. We also have a renowned CLL Specialist, Dr. Terry Hamblin, to answer questions for us.
Take care and God Bless,
Loren aka BaldEagle
www.cllcfriends.com
January 19th, 2008 at 12:42 pm
Loren,
Hi, and thanks for the comment and invite. I just took a fast look at the site, it looks like a great place to be able to get personal and actual information on life as well as expectations on what to expect. I will be joining in the next day or so. Today we meet our younger son at the airport, home from the army on a 4 day leave. I pray your treatment goes better than expected.
PEACE, frank